Bring your light for the World Duchenne Awareness Day!

On September 7, all over the world, World Duchenne Awareness Day (WDAD) will be celebrated, an important initiative created and coordinated by the World Duchenne Organization (formerly UPPMD). The aim of the World Duchenne Awareness Day is to raise awareness of Duchenne Muscular Dystrophy: the most common type of muscular dystrophy in children. It is a progressive disorder that causes muscles to become weaker over time until it affects the whole body.

BRING YOUR LIGHT TO DUCHENNE FAMILIES BY MAKING A DONATION!

On World Duchenne Awareness Day, we not only want to raise awareness among the general public about Duchenne (and Becker) Muscular Dystrophy, but also to raise awareness of a specific subject each year among the Duchenne community. For 2019, this special topic is ‘Nutrition in DMD’.

Not everyone may be aware of the need to pay special attention to nutrition and the intake of fluids. Also, the use of supplements in Duchenne needs attention, as not many people are aware of the risks of taking supplements, especially in combination with other medication. In this video, Dr Erik Henricson explains the importance of nutrition in DMD.

BRING YOUR LIGHT TO DUCHENNE FAMILIES BY MAKING A DONATION!

Release a virtual balloon by adjusting your social media profile picture with a red balloon or the special Facebook Duchenne Balloon filter. A simple way to show the world your support to all patients affected by Duchenne!

For more information and materials, please visit the World Duchenne Awareness Day website here.

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