Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy

Kern V, Wicklund M, Haulman A, et al. Ankle bracing practices in ambulatory, corticosteroid-naive boys with Duchenne muscular dystrophy. Muscle & nerve 2019

Abstract

INTRODUCTION: Loss of ambulation in Duchenne muscular dystrophy (DMD) presages scoliosis, respiratory failure and death. Strategies to maintain ankle range of motion (ROM) are employed, but little evidence exists to support their use and limited information is available concerning current practice.

METHODS: Baseline bracing data from 187 boys participating in a multicenter, international clinical trial were analyzed.

RESULTS: Ankle foot orthoses (AFOs) were recommended for 54% of the boys: nighttime static AFOs and nighttime dynamic AFOs in 94% and 6% of these boys respectively. Daytime static AFOs were recommended for 3 boys. Compliance with bracing recommendations was 54% for nighttime static braces and 67% for nighttime dynamic braces.

DISCUSSION: The basis for the variation in recommended AFO use is unknown and requires further study. Long-term follow-up of boys may permit assessment of the effects of AFO use.

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