Duchenne Data Foundation presents: Duchenne Academy

Join patient groups, experts and companies from different countries of the world over 4 days at the Duchenne Academy Friday 23 to Sunday 25 November at President Hotel in Athens.

Draft programme will be uploaded soon

The Duchenne Data Foundation is planning an Educational Programme through its Duchenne Academy that will last 6 months, and will be opened by an international workshop that will be held in Athens on Friday 23 to Sunday 25 November 2018.

Along the three days, the training workshop will involve patient groups, experts, and companies from different countries of the world who are part of the DMD community, discussing the following topics:

  • Industry updates
  • Clinical updates (e.g. on the standards of care)
  • Community education through advocacy, fundraising, volunteering and community engagement

Outcome

This will be an opportunity to return back home with suitcases full of information, but, most of all, to meet new people, see old friends, and enjoy the Duchenne community in a fantastic location.

 

Food and accommodation

Duchenne Data Foundation will cover food and accommodation costs for one member of your organisation, and we are happy to cover the flight costs for one representative of organisations with an income under 500.000 euro per year.

If you have any inquiries about this event, please contact Nicoletta Madia at info@duchennedatafoundation.org.

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