Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy

Ong KS, Kinnett K, Soelaeman R, et al. Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy. Pediatrics 2018;142:S118-S128

Abstract

Care Considerations for Duchenne Muscular Dystrophy were published in 2010. However, little is known about the extent to which these considerations were implemented after publication. With this article, we provide direction on evaluating the uptake of the 2018 Duchenne Muscular Dystrophy Care Considerations. We identify key elements of care and present suggestions for their use in evaluation and research.

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