World Duchenne Awareness Day is coming!
Everybody around the world will raise awareness for Duchenne Muscular Dystrophy on September 7th. This year, the WDAD theme is Standards of Care. There is a compelling need to ensure that wherever they are in the world, individuals affected by this condition can benefit from a Standard of Care that is informed by the best practice of the best clinicians from all over the world. It is equally important that the information available to families is understandable, contemporary, and based upon the latest research.
This year’s activities will include conferences to update clinicians and other healthcare professionals, the publication of the updated DMD Family Guide, and the release of a series of educational videos, understandable for young people so they can become advocates of their own health. Education is the first step to implement the latest Standards of Care, and make Duchenne dreams come true!
Head over to www.worldduchenneday.org for more information about this day!